Sufferers' Stories

With great power comes great responsibility. If I told you that three tablets per day could make you feel 10 years+ younger after just two doses, would you believe me? In 1989 the cystic fibrosis transmembrane conductance regulator (CFTR) gene was discovered. Defects within this gene cause severe deterioration over time in the lungs...

In January 2014 I was elated to have a beautiful healthy baby Girl. By the beginning of February I was devastated as Florence had been diagnosed with Cystic Fibrosis. Now 6 years on the years have passed, the sadness has subsided and the most incredible little girl has emerged.  Florence is definitely a fighter....

As part of this year’s CF week, I’ve been asked to write a little something about my life with Cystic Fibrosis. I’ve been alive for 38 years (which is a pretty long time when you consider that the average life expectancy of someone with CF is around 40), so I’ll try to summarise as...

I get up and my overnight feed has finished so I detach myself and I have to take 2 Creon capsules straight away, these are to break down the fat in the feed. I get out of bed and I have to have my inhaler(Salbutmal) and (Seretide) then my first nebuliser of the day...

Day 64 in isolation due to Coronavirus and another 35 days to go.  Having Cystic Fibrosis is annoying at the best of times but having to be in lockdown as well is a struggle.  I have to be “shielded” until the end of June as I am classed as “extremely vulnerable” My dad has...